This is how Isaiah is entertaining himself this evening.
Isaiah let me take a few posed photos today, so I thought I’d share before I head off to bed.
Isaiah had his EEG today. He was extremely nervous, after his not-so-pleasant experience with the MRI. We watched a video on YouTube of a girl his age getting an EEG, which helped calm some of his fears, but he was still pretty worried.
When we arrived, the tech, Emily, introduced herself and explained the process to Isaiah. She already had everything set up and ready, so there wasn’t really any waiting, once she’d made sure Isaiah understood. She let him examine the pen, cleaning gel, wax, and wires and got him settled on the bed.
Emily talked cheerfully with Isaiah while she got him ready for the test. She asked him questions about things he liked and joked with him, pausing occasionally to explain something she was doing. Isaiah answered her questions and laughed. He did his best to stay still for her, though he got a little wiggly when he started to giggle.
Once all the wires were in place, I climbed onto the bed with Isaiah so he could cuddle with me while he fell asleep. Emily turned off the lights and told him to keep his eyes closed until she told him to open them. He fell asleep pretty quickly and had a little trouble waking back up when it was time. He followed directions beautifully through the whole process. When she declared him done, Isaiah rolled onto his tummy to admire the wires that were attached to him. He loved all the different colors.
When everything was finished, Isaiah announced that he liked this test, so it would be okay with him if he ever had to do it again.
Info about why he had an EEG can be found here.
As Isaiah has gotten older, I’ve tried not to post every little thing online. However, it’s reached a point now where information needs to be shared. So, if you haven’t heard about this, don’t assume I’ve been keeping secrets. I just haven’t shared it.
In November, Isaiah had a seizure right after he fell asleep. I brought him to the doctor after that, to see what needed to be done. His recommendation was to see a neurologist. Unfortunately, pediatric neurologists aren’t exactly easy to come by, so we had a two month wait to get in.
Finally, we saw the neurologist this month. After an exam, he said that Isaiah’s neuro workup looked good, but any seizure needs to be taken seriously. Because Isaiah had never had a seizure before, there was some possibility that it would never happen again. More than half of the people who have a seizure only have one. The catch is that there’s really no way to predict who will have another seizure and who won’t, so it’s basically just a waiting game. The longer he goes seizure free, the greater the possibility it won’t happen again. To be on the safe side, the neurologist ordered an MRI and EEG. The goal with these is to look for markers that might suggest a predisposition toward seizures. Or, if we’re lucky, possibly catch a seizure during the EEG to get more information.
On Saturday (Isaiah’s birthday), he had another, smaller seizure, again, while he was asleep. Since he’s only had seizures in his sleep, it raises the question of whether or not there have been others that we just didn’t know were happening. He wakes up totally unaware that anything has happened and I’m a heavy enough sleeper that no one would ever know the difference.
Today, we got up bright and early and headed to the nearest children’s hospital for an MRI. Because Isaiah is so young, he wouldn’t be able to lie still for the hour required for the test, so he was given general anesthesia. In an effort not to totally freak him out, I didn’t give Isaiah many details about what was going to happen. I simply explained that we needed pictures of his brain and that it’s easier to do when he’s asleep, so the doctors would give him medicine to help him do so. He figured he could handle that, but, since he’d be sleeping, he needed a buddy to sleep with. He brought his stuffed lemur, Zaboo, (named after Zaboomafoo) to snuggle.
When we arrived, Isaiah met his nurses (who were amazing) and got settled on his child size bed. They explained to him what was going to happen and let him choose from different scented masks for his anesthesia. He chose bubblegum, which he later decided he hated and would not choose again. Then he got to choose from their toy stash so he’d have something to keep him busy until it was his turn. He choose a magna doodle and set to work creating art, with a little help from Zaboo and the grownups around him.
When it was time to go back, he gave hugs and headed off. My mom and I went to the cafeteria to kill time and have some breakfast. When we returned, it was time to go get him. He was pretty groggy, but happy to see us. The anesthesia upset his tummy a bit, but he was soon declared free to go home, with the recommendation that we not give him any food or drink until we arrived at the house.
By the time we got home, he was back to his happy, bouncy self. He’s pretty sure he never wants another MRI, if they’re going to make him sleep for it, but he survived it. And he knows the EEG will be much easier. And maybe a little cool, according to his buddy at church.
Update: The MRI came back normal. However, that doesn’t guarantee that he won’t have any more seizures. A post about his EEG can be found here.
Isaiah’s Birthday Interview
Age: Six. I’m six!
What are you going to be when you grow up? I’m going to be working at the Bob the Builder and be a magic guy.
What is something that is hard for you? School. When we’re talking about letters.
What is something you’re good at? Legos and puzzles. Helping Gram.
What are you afraid of? The dark. You already knew I was ‘fraid of the dark!
What do you like to do with family? Everything. I like to play.
What do you like to learn? New songs.
Where would you go on vacation? To see Winter [the dolphin] and Big Cat Rescue.
Who is your hero? Everybody who lives in this house.
How old is Mama? Grown up.
How old is Gram? 18.
How old is Grandfather? 59. [He may have had a little help on this one…]
What makes you happy? Going to the park.
What makes you sad? Not getting to go to the park.
What’s the best thing about your birthday? Build this [marble] tower.
Favorite food: Donuts
Favorite subject at school: P.E.
Favorite thing to do: Puzzles
Favorite book: They’re all my favorites!
Favorite animal: Lemur, cheetah, lion, and dino
Favorite color: Yellow, green, red, and blue
Favorite teacher: All of them.
Favorite sport: The ball kind
Favorite birthday gift this year: Star Wars ships
Favorite show: HobbyKidsTV
Favorite movie: Toothless [How to Train Your Dragon]
Favorite holiday: Christmas
Favorite restaurant: Pizza Ranch
Gifts and Silliness
Isaiah was pretty excited about opening his gifts. He got a few shipped her by a friend and his gifts from family. He got some dinosaur toys, some awesome Star Wars ships, and a marble track.
Isaiah has been asking for a watch off and on for a while. Since all the grown ups in the house have one, he figures they must be super important. Much to his delight, the smallest package he opened today had an awesome Jurassic World watch in it.
Then, for fun, he got an iTunes gift card that was creatively wrapped. He opened a box of spaghetti, that still had noodles in it. He was so excited about the noodles and trying to eat them all as fast as he can (raw noodles are a special treat, in his world) that he almost missed the actual gift. After he’d devoured a noodle and declared it the best gift ever, we managed to convince him to look inside the box to see what else was there. He’s almost as happy about the card as he was about the noodles.
Isaiah was in the church’s Christmas program this year and wanted to share the videos with the world.
We try to get family pictures taken every year or two. This year, pictures were a high priority because our family has grown. DJ got married this summer, bringing Shiloh into our family. Obviously, it’s important to have a family picture that includes her.
So, we got everyone together when DJ and Shiloh came for a belated Thanksgiving celebration and set up a bunch of pictures.
First, we needed to get some individual headshots and “family” shots (my parents, DJ and Shiloh, Isaiah and me). Those took some shuffling around and craziness, but we pulled it off somehow.
Then, it was time to cram everyone into the small space in front of our Christmas tree for a whole group photo. Of course, the room isn’t quite big enough to back the camera up and get a wide shot. That would be too easy. But, with some serious effort, we managed to get it set up and set the timer. A few photos later, we had our shot.
Before I could take the camera down, Isaiah had to get a few special shots and my mom and DJ wanted to pose with the cats. Once those were done, it was time to download everything and see what we had. We definitely got some winners!
Isaiah made a tree with real leaves last year and has been asking to do something fun again this year. Unfortunately, it rained before we got leaves collected to do anything using real leaves. Oops.
Since the leaves were a soggy mess, we had to get creative. I pulled out some paint and a roll of paper and informed Isaiah that we’d be painting our leaves this year. At first, he was pretty sure that was a bad idea, especially when I told him we could use his handprint as leaves. Apparently, sticking his hands in a bunch of paint was not appealing.
Of course, we couldn’t paint the leaves without a tree to put them on, so I started by painting a trunk and some branches. I even included a hole in the tree with eyes peeking out. While I was doing that, Isaiah managed to locate the green paint and pour a bunch of it onto a paper plate. He wanted to help and decided adding grass under the tree was the perfect job for him. As he painted, he sang “The Green Grass Grows All Around” at the top of his lungs.
When the trunk was finally finished, it was time to add leaves. With a little coaxing, Isaiah put some paint on his hands in bright colors. He made some handprints, making sure they hung neatly from the branches I’d painted. Then, he decided that it wouldn’t be a “fall” tree if there weren’t leaves, well, falling off of it. So, he set to work making handprint leaves in the space under the branches and even a couple on the grass.
Once he’d made a few handprint leaves, Isaiah decided that paint on his hands wasn’t such a horrible experience. He made lots more leaves and even got creative with the colors he was using. Instead of solid yellow or orange leaves, he started using combinations of colors to show the leaves in the process of changing color.
After a while, Isaiah declared the tree complete. He worked on rinsing out the brushes he used while I cleaned up the paint and hung his masterpiece. Then, of course, he had to pose for a picture with it to share with the world.
The pumpkin patch near us has pedal-powered go carts. They’re intended for teens and adults, so Isaiah’s feet don’t reach the pedals. Our solution has always been for him to ride in an adult’s lap. This year, being a “big boy” now, he wanted to steer. Umm, okay…?
Isaiah: Let me drive, Mama!
Me: Okay. But drive carefully.
*Approaching a corner*
Me: Isaiah, we need to turn.
Me: Isaiah! Turn!!!
*Turns the wrong direction*
Me: Toward the path, not away from it!!!
Isaiah: I am!!!
Me: Yeah, sure.
Me: Hey! I said to stay on the path!
*Isaiah starts driving into the corn field by the path*
Isaiah: Not in the corn! We s’posed to stay on the path!!!!
Me: I’m not the one driving!!
*I get us back on track*
This conversation continued for the rest of the ride. When we reached the end, he wanted to go again. Of course. Because once wasn’t terrifying enough.
What will I do when he’s ready to start driving a car?! Help!!
Please note: This was a funny situation. No one was angry. As far as driving goes, thankfully, we have a whole decade before I have to figure that one out. Thank goodness!